Mailing address...

Address for postcards:

I am deleting the hospital address today (April, 6th) since we are hoping to be out of here in the next few days. Satori is LOVING the postcards and asked that I put our address here for anyone who still wants to send one.

Satori Lewis
1 Harbor Road
Dayton, NV
89403 USA

At the risk of repeating myself (which I do often)

We have good insurance, a great surgeon and an excellent hospital!!


**Satori is in need of nothing but exciting postcards**

To see pictures of Tori with her cards or read updates about her condition click here.

Hello!

For those of you who don't know me, my name is Melissa Lewis, Haut Totes on Etsy, as well as Hauttotes on twitter.

My 10 year old daughter Satori has Spinal Muscular Atrophy (type II) She uses a power wheelchair, can't walk, crawl, etc. Despite that she's a rock star!! She has a super sense of humor, gets straight A's even though she misses an average of 40 days of school a year! She's a great sister & daughter & a fantastic person all around.

Because she is so physically weak her body doesn't hold its self up well and she has developed severe scoliosis. The curve of her spine it is now starting to crush her lung, so on March 31 she will have full spinal fusion. They will open her back from the neck all the way down, insert 2 titanium rods, one on either side of her spine, wire the whole thing up and place donor bone in between all the vertebrae. Eventually it will all grow together "fusing" her spine into one long bone.

We are traveling to California to have this done, with an estimated stay in the hospital of 7-10 days. I am hoping to get people to send her postcards from all over. I think that the messages (and pictures) will be fun for her. I also plan to take an atlas and have her mark off states and countries (sneaking in a little geography).